What is Sensory Processing Disorder (SPD)?

Well, this post proved difficult to write. Why? Because I've only been able to find a few good definitions of SPD. I guess this speaks to the fact that SPD is still a relatively unknown condition, that there's more to be discovered about SPD, and that it is a tricky condition to define! 

The Sensory Processing Disorder (SPD) Foundation provides this helpful description:

"Sensory processing... is a term that refers to the way the nervous system receives messages from the senses and turns them into appropriate motor and behavioral responses. Whether you are biting into a hamburger, riding a bicycle, or reading a book, your successful completion of the activity requires processing sensation or "sensory integration."

SPD "...is a condition that exists when sensory signals do not get organized into appropriate responses. A person with SPD finds it difficult to process and act upon information received through the senses, which creates challenges in performing countless everyday tasks. Motor clumsiness, behavioral problems, anxiety, depression, school failure, and other issues may arise if the disorder is not treated effectively."

SPD Foundation for more information

Here's how SPD feels to me:

It feels like the "wires" in my brain are crossed when it comes to certain things, like sights and sounds. For example, when I hear someone breathing, my brain thinks something is hurting me. Now... I know that can't be right, but my brain thinks it anyway! 

It's not just sounds; my brain has "the wrong idea" about sights, tastes, the way things feel, and all sorts of other things! For example, someone else might think a certain type of fabric feels nice and soft, but to me it feels scratchy and painful, so painful that it would bring me to tears when I was a child. 

It can be exhausting, frustrating, disheartening, and confusing. In my childhood years, when my brain was having an extra hard time trying to understand thing, I threw enormous temper tantrums as a way of coping; I always felt ashamed after a temper tantrum. Sometimes I could get through a day okay, but other times, it felt like it was all just too much for my brain and body to deal with. 

What does it feel like to you, to your child, or to someone else that you care about? I'd love to hear your thoughts! 

Everyone is bugged by something! So what's the difference?

When someone who is baffled by SPD inquires about it,  it sometimes goes a little something like this : "So what if you don't like the seams on your pants! I don't like the sound of nails on a chalkboard. Just because you don't like something does not mean you have a condition!" 

Other times, people ask a genuine question:  "A lot of people are bothered by sensory things, at what point is it a condition?"

It's true; nearly everyone is bugged by something. Lots of people do not like sounds, feelings, tastes, etc. Take the chalkboard example; how many people hate the sound of nails on a chalk board? The difference comes down to whether or not it affects their ability to function in daily life. Someone with SPD struggles SOOO much with sensations that they sometimes cannot get through the day! They may not do well in school; they may have a hard time being near people; they may have difficulty performing their work duties. This is all because their mind and body are fighting so hard to cope with sensations. People without SPD are usually still able to function, and possibly even ignore the sensations that bother them. 

I often say that, for me, the world is like an assault on my senses. This may be true for other people with SPD. It's difficult to ignore things in the world that feel like an assault on your body and brain. A young person you know with SPD may cry a lot, hold their ears, hit others, pull off their clothes, throw their body against the wall, scream, scratch till it hurts, grab at things constantly, etc. These are all examples of how a little body might try to expel the terrible feelings associated with SPD. 

Here's an example from my childhood:
I was about 5 years old and I was at a restaurant. I had to use the restroom so my mom took me. After doing my business, it was time to wipe. I remember wiping... and wiping.... and wiping... but I still just did not feel dry! I kept wiping and wiping. My mom, of course, asked me what was going on and I explained my dilemma of not being dry enough. She was supportive. She came in and tried to help me decide when I was dry. Pretty soon, however, my mom realized that other people had entered the restroom and that they were waiting for our stall. I could hear the tone in her voice change as she urged me to stop wiping. I could not stop. I NEEDED to feel dry. I felt desperate to be dry! I broke into sobs and my mom became more flustered. The wiping was starting to hurt.. I cried harder. But I still could not stop. It was as if the lingering feeling of wetness was crawling into my skin and seeping into my brain. It was like a burning, nagging pain; it was swallowing me whole. I wiped and wiped and wiped.... it hurt so much...I sobbed and sobbed... but I kept going. My mom was choking back tears. I could always tell that she wanted so badly to help me get rid of the sensations, but that she was also aware of our surroundings, the time, other people (the other important things in life that parents keep track of) so she knew she had to pull me away somehow... whether or not the sensation had been dealt with. She also knew that the longer she let me sit in a sensory storm, the worse it would get. As much as I screamed, kicked, and cried while she pulled me off the toilet, I needed it because I was never going to be dry enough. I never wanted these things to happen. I always felt guilty after a sensory storm. They often occurred while I was doing something fun or interesting that I did not want to stop doing, but once a bad sensation got a hold of me, it would not let me go. 

This example illustrates the difference; people with SPD struggle with sensations to such a great extent that it affects their ability to function. It may affect their relationships, their jobs, their schooling etc. It is not something that can just be "ignored" or "dealt" with. People with SPD need support, patience, a caring team, and lots of love. Love definitely helps :). 

Thoughts? Questions? Does this story sound familiar? 

Sticky, Itchy, and Downright Icky Sensations: Jeans

Time to write about my first Sticky, Itchy, and Downright Icky Sensation!!! YAY!

Jeans/Seams on Pants

As far as I can remember, it all started with jeans. Almost everything about jeans drove me crazy when I was a kiddo (beginning around age 5 maybe?). The seams were particularly uncomfortable (they felt like tiny razor blades cutting into the sides of my legs), but then there was also the waistband, the fabric, the feeling of one pant leg being tighter than the other, the crotch being too high or too low, and the edge of the seam at the end of the leg; all of these things were ugghh... terrible!! Absolutely unbearable! Impossibly displeasurable!... Nope, that last one doesn't work... thought I was on the verge of a broadway song there... sigh. Anyway, jeans were awful! So what is a parent to do with a child who won't wear jeans? Oh man, so many parents are going to relate to this one... You put your kid in sweatpants... all the time!!! Actually, for me, it was often a one piece bathing suit with sweatpants over it. I'd wear this outfit day after day, happy as a clam!! I didn't care what people thought! I could FUNCTION!! This was priceless and totally worth the fashion faux pas. Sound familiar parents? Have you put your kid in the same sweatpants day after day to avoid a sensory storm? It's okay. My parents understand :)  

I joke, but honestly, what worked best for my family was compromise. The truth was my parents were not going to magically fix my sensory issues with jeans. All we could do was compromise on outfits that I felt comfortable in and that my parents felt were still appropriate enough for school. I understand that nowadays, there are seamless jeans and things like that for kids with sensitive skin or SPD. I wish those had been around when I was a kiddo; they might have worked for me....... I might try them now!!! I did look up pajama jeans a few months ago and considered trying them for day use. Hey, whatever works! But anyway, I believe that compromise may be the best way to combat this issue and that if you can get your hands on some seamless pants, they may turn out to be a good solution! Have you tried them already? Thoughts?